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Privacy Policy
INTRODUCTION: BY INSTALLING, USING OR OTHERWISE ACCESSING THE APPLICATION FROM ANY DEVICE, MOBILE OR OTHERWISE, YOU ARE AGREEING TO ABIDE BY THE TERMS AND CONDITIONS OF THIS PRIVACY NOTICE. IF YOU DO NOT AGREE TO THESE TERMS AND CONDITIONS, DO NOT DOWNLOAD AND/OR ACCESS OUR APPLICATION.
This Privacy Notice sets forth how your information is collected, used, transferred, and stored through the mobile application that was created by the Psychiatry department at the University of Illinois (“Application”) and the terms and conditions governing use of the Application. The Application is owned by the Board of Trustees of the University of Illinois (“University”, “we”, “our”, “us”). The purpose of this Application is to support the BiAffect ResearchKit study, which is designed to unobtrusively understand mood and cognition in bipolar disorder by tracking typing dynamics using a custom keyboard. This Privacy Notice is also subject to the University of Illinois web privacy notice at http://www.vpaa.uillinois.edu/policies/web_privacy.cfm
I. WHAT INFORMATION MAY THE APPLICATION COLLECT FROM YOU?
A. Personal Information
We request that you register with us to use the Application. Registration with us is optional; however, you may not be able to use many of the features offered by the Application unless you register.
Should you register with us, you will generally provide: name, email address, password, and demographic information. By providing us with personal information, you are consenting to our use of it in accordance with this Privacy Notice.
Your data, without your name, will be added to the data of other study participants and analyzed by the study team. You will have a unique account that you can use to review your own data.
We may periodically ask you to answer questions about yourself (e.g., your sleep, appetite, and your energy and activity level), your medical history (e.g., if you or any of your blood relatives have been given a diagnosis of bipolar disorder), and your current health and symptoms (e.g., if you have been feeling down, depressed, hopeless, or trouble with your concentration) to track changes. You may skip any questions that you do not wish to answer.
We will electronically process your data and separate your account information (email) from your study data (your responses to surveys and the measurements from the phone itself when you perform activities). We will combine your coded study data (without your name or other identifying information) with those of other study participants. The combined data will be encrypted and transferred electronically to secure servers at Sage Bionetworks for storage, and will be accessible by researchers at the University of Illinois at Chicago.
B. Automatically Collected Non-Personal Information.
The Application may collect certain non-personal information automatically that does not, on its own, permit direct association with any specific individual. The Application will install a custom-built keyboard that replaces the standard default iPhone keyboard in order for the researchers to better understand keyboard dynamics metadata (but not to track the actual words). Then periodically we will ask you to answer questions and perform some activities via your mobile phone. These survey questions may be about your health, exercise, diet, sleep, medicines, etc. or about how you are feeling in general. In addition to surveys, the activities will be some brief tasks that you perform while holding your phone for a short period of time. We will ask you to perform specific tasks weekly while holding or using your mobile phone and record sensor data directly from your phone. Your study data will include your responses to surveys and the measurements from the phone itself when you perform an activity.
C. Location Information.
We do not use or collect your precise geographic location.
II. HOW IS YOUR PERSONAL INFORMATION USED?
User personal information is collected to provide a service or function that is directly relevant to the use of the Application. Specifically, the research team will analyze the combined data and report findings back to the community through blogs or scientific publications. Your data, without your name, will be added to the data of other study participants and may be analyzed by the study team. You will have a unique account that you can use to review your own data.
III. IS YOUR PERSONAL INFORMATION SHARED WITH ANY THIRD PARTIES OUTSIDE THE UNIVERSITY?
We may share your personal information outside the University as required by law, order of governmental authority, or court order to be disclosed; when we believe in good faith that disclosure is necessary to protect our rights, protect your safety or the safety of others, investigate fraud, or respond to a government request. We may also share your personal information if permitted under University of Illinois policy, authorized by an approved University of Illinois contract, for good cause by the Chancellor or the Vice President for Academic Affairs of the University of Illinois.
IV. HOW IS YOUR PERSONAL INFORMATION PROTECTED?
We are committed to protect your information and keep your identity as confidential as possible, however total confidentiality cannot be guaranteed. Except as required by law, you will not be identified by name or by any other direct personal identifier. The data collected through the app will be encrypted on the smartphone, transferred electronically and stored securely on the data repository and analysis platform using cloud services at Sage Bionetworks. Your contact information, including your name and e-mail address will be stored separately from the study data. We will use a random code number instead of your name on all your study data. This code cannot be used to directly identify you. Information about the code will be kept in a secure system We will not access your personal contacts, other applications, text or email message content, or websites visited. We will never sell, rent or lease your contact information. We follow generally accepted industry standards to protect the personal information submitted to us. No method of transmission, or method of electronic storage, is 100% secure. Therefore, we cannot guarantee its absolute security.
This information should not be construed in any way as giving business, legal, or other advice, or warranting as fail proof, the security of information provided via the Application.
V. OPT-OUT INFORMATION
You may change your information preferences and opt-out of information collection by uninstalling the Application. Your participation in this study is voluntary. If you are eligible and decide to participate, we will ask you to provide an e-signature, by signing with your finger on the screen at the end of the enrollment process. We will also send a copy of this consent form, along with your e-signature, to your email address.
You do not have to sign this consent form. But if you do not, you will not be able to participate in this research study. You may decide not to participate or you may leave the study at any time. Your decision will not result in any penalty or loss of benefits to which you are entitled.
Although you can withdraw from the study at any time, you cannot withdraw the coded study data that have already been distributed. If you withdraw from the study, we will stop collecting new data but the coded data that you have already provided will not be able to be destroyed or deleted.
The Study Principal Investigator or the sponsor may also withdraw you from the study without your consent at any time for any reason, including if it is in your best interest, you do not consent to continue in the study after being told of changes in the research that may affect you, or if the study is cancelled.
VI. HOW LONG IS YOUR PERSONAL INFORMATION STORED?
We will retain user personal information for as long as you use the Application and for a reasonable time thereafter. If you’d like us to delete your personal information that you have provided via the Application, please contact the study principal investigators using the contact information below and we will respond in a reasonable time. Please note that some or all of the user personal information may be required in order for the Application to function properly, and we may be required to retain certain information by law.
Contact information for the study principal investigators is as follows:
Peter C. Nelson, PhD
Professor of Computer Science
Dean of Engineering
University of Illinois at Chicago
College of Engineering
851 South Morgan Street
Room 838 SEO, M/C 159
Chicago, IL 60607
Alex Leow, MD, PhD
Associate Professor of Psychiatry and Bioengineering
The Psychiatric Institute
1601 West Taylor Street
Room 584
Chicago, IL 60612
VII. CHILDREN
The University is committed to complying fully with the Children’s Online Privacy Protection Act. Accordingly, if a user of the Application is under the age of thirteen, such user is not authorized to provide the University with personal information, and the University will not use any such information in its database or other data collection activities. The University appreciates cooperation with this federally mandated requirement. This application is only intended for use by individuals over the age of eighteen. Users under the age of thirteen and their parents or guardians are cautioned that the collection of personal information volunteered by unauthorized children online or by e-mail will be treated the same as information given by an adult until the University becomes aware that the user is under the age of thirteen and such information may be subject to public access.
VIII. CHANGES TO THIS PRIVACY STATEMENT
We may amend this Privacy Notice from time to time. If we change this Privacy Notice we will post the changes on biaffect.com. Your continued use of our Application after any such changes will constitute your acceptance of the updated Privacy Notice. If you do not wish to accept the revised Privacy Notice, you must not use or access (or continue to use or access) our Application. Please do regularly check our website to determine if the Privacy Notice has been updated and to review those changes before deciding whether or not to access (or continue to access) our Application.
IX. USER ACCESS TO INFORMATION AND CONTACT INFORMATION
To review and update your personal information to ensure it is accurate, contact us at [email protected]
X. DISCLAIMER OF WARRANTIES.
YOU EXPRESSLY AGREE THAT USE OF THE APPLICATION AND ANY CONTENT (SUCH AS TEXT, DATA, INFORMATION, AUDIO, VIDEOS, GRAPHICS, OR PHOTOGRAPHS) MADE AVAILABLE THROUGH THIS APPLICATION (COLLECTIVELY, “MATERIALS”), IS AT YOUR SOLE RISK. THE APPLICATION AND MATERIALS, ARE PROVIDED ON AN “AS IS,” “AS AVAILABLE,” AND “WITH ALL FAULTS” BASIS. UNIVERSITY DISCLAIMS ALL EXPRESS AND IMPLIED CONDITIONS, REPRESENTATIONS, AND WARRANTIES OF ANY KIND, INCLUDING BUT NOT LIMITED TO ANY IMPLIED WARRANTIES OR CONDITIONS OF MERCHANTABILITY, SATISFACTORY QUALITY, FITNESS FOR A PARTICULAR PURPOSE, OR NON-INFRINGEMENT. UNIVERSITY MAKES NO WARRANTY THAT THE SERVICE WILL MEET YOUR REQUIREMENTS OR THAT THE APPLICATION OR THE MATERIALS, WILL BE UNINTERRUPTED, TIMELY, SECURE, OR ERROR FREE; NOR DOES UNIVERSITY MAKE ANY WARRANTY FOR ANY PURPOSE OF THE APPLICATION OR MATERIALS OR RESULTS THAT MAY BE OBTAINED THROUGH USE OF THE APPLICATION OR AS TO THE ACCURACY, SAFETY, RELIABILITY OR USEFULNESS OF ANY INFORMATION OBTAINED THROUGH THE APPLICATION. UNIVERSITY DISCLAIMS ANY WARRANTY THAT THE APPLICATION OR THE MATERIALS, ARE FREE OF VIRUSES, WORMS, TROJAN HORSES, OR OTHER CODE THAT MANIFESTS CONTAMINATING OR DESTRUCTIVE PROPERTIES.
XI LIMITATION OF LIABILITY.
UNIVERSITY, ITS TRUSTEES, DIRECTORS, OFFICERS, FACULTY, STAFF, STUDENTS, EMPLOYEES, CONSULTANTS AND AGENTS ASSUME NO LIABILITY IN RESPECT OF ANY INFRINGEMENT OF ANY COPYRIGHT, TRADEMARK, PATENT OR OTHER RIGHT OF THIRD PARTIES ARISING IN CONNECTION WITH THE APPLICATION AND MATERIALS AND ARE NOT LIABLE FOR ANY DIRECT, INDIRECT, PUNITIVE, SPECIAL, INCIDENTAL, CONSEQUENTIAL OR EXEMPLARY DAMAGES (INCLUDING,WITHOUT LIMITATION, ANY DAMAGES CAUSED BY USE AND IMPLEMENTATION OF MATERIALS, LOSS OF BUSINESS, REVENUE, PROFITS, GOODWILL, USE, DATA OR OTHER ECONOMIC ADVANTAGE) ARISING OUT OF OR IN CONNECTION WITH THE APPLICATION OR MATERIALS, EVEN IF UNIVERSITY, ITS TRUSTEES, DIRECTORS, OFFICERS, FACULTY, STAFF, STUDENTS, EMPLOYEES,CONSULTANTS AND/OR AGENTS HAVE PREVIOUSLY BEEN ADVISED OF, OR REASONABLY COULD HAVE FORESEEN, THE POSSIBILITY OF SUCH DAMAGES, HOWEVER THEY ARISE, WHETHER IN BREACH OF CONTRACT OR IN TORT (INCLUDING NEGLIGENCE OR GROSS NEGLIGENCE). YOU HAVE SOLE RESPONSIBILITY FOR ADEQUATE PROTECTION AND BACKUP OF DATA AND/OR EQUIPMENT USED IN CONNECTION WITH THE APPLICATION.
XII. GOVERNING LAW
Construction of the Privacy Notice, including without limitation, disclaimers above and resolution of disputes thereof are governed by the laws of the State of Illinois. The laws of the State of Illinois, U.S.A., shall apply to all uses of this Application and Materials. By use of this Application and Materials, the user agrees that use shall conform to all applicable laws and regulations and user shall not violate the rights of any third parties.
This Privacy Notice sets forth how your information is collected, used, transferred, and stored through the mobile application that was created by the Psychiatry department at the University of Illinois (“Application”) and the terms and conditions governing use of the Application. The Application is owned by the Board of Trustees of the University of Illinois (“University”, “we”, “our”, “us”). The purpose of this Application is to support the BiAffect ResearchKit study, which is designed to unobtrusively understand mood and cognition in bipolar disorder by tracking typing dynamics using a custom keyboard. This Privacy Notice is also subject to the University of Illinois web privacy notice at http://www.vpaa.uillinois.edu/policies/web_privacy.cfm
I. WHAT INFORMATION MAY THE APPLICATION COLLECT FROM YOU?
A. Personal Information
We request that you register with us to use the Application. Registration with us is optional; however, you may not be able to use many of the features offered by the Application unless you register.
Should you register with us, you will generally provide: name, email address, password, and demographic information. By providing us with personal information, you are consenting to our use of it in accordance with this Privacy Notice.
Your data, without your name, will be added to the data of other study participants and analyzed by the study team. You will have a unique account that you can use to review your own data.
We may periodically ask you to answer questions about yourself (e.g., your sleep, appetite, and your energy and activity level), your medical history (e.g., if you or any of your blood relatives have been given a diagnosis of bipolar disorder), and your current health and symptoms (e.g., if you have been feeling down, depressed, hopeless, or trouble with your concentration) to track changes. You may skip any questions that you do not wish to answer.
We will electronically process your data and separate your account information (email) from your study data (your responses to surveys and the measurements from the phone itself when you perform activities). We will combine your coded study data (without your name or other identifying information) with those of other study participants. The combined data will be encrypted and transferred electronically to secure servers at Sage Bionetworks for storage, and will be accessible by researchers at the University of Illinois at Chicago.
B. Automatically Collected Non-Personal Information.
The Application may collect certain non-personal information automatically that does not, on its own, permit direct association with any specific individual. The Application will install a custom-built keyboard that replaces the standard default iPhone keyboard in order for the researchers to better understand keyboard dynamics metadata (but not to track the actual words). Then periodically we will ask you to answer questions and perform some activities via your mobile phone. These survey questions may be about your health, exercise, diet, sleep, medicines, etc. or about how you are feeling in general. In addition to surveys, the activities will be some brief tasks that you perform while holding your phone for a short period of time. We will ask you to perform specific tasks weekly while holding or using your mobile phone and record sensor data directly from your phone. Your study data will include your responses to surveys and the measurements from the phone itself when you perform an activity.
C. Location Information.
We do not use or collect your precise geographic location.
II. HOW IS YOUR PERSONAL INFORMATION USED?
User personal information is collected to provide a service or function that is directly relevant to the use of the Application. Specifically, the research team will analyze the combined data and report findings back to the community through blogs or scientific publications. Your data, without your name, will be added to the data of other study participants and may be analyzed by the study team. You will have a unique account that you can use to review your own data.
III. IS YOUR PERSONAL INFORMATION SHARED WITH ANY THIRD PARTIES OUTSIDE THE UNIVERSITY?
We may share your personal information outside the University as required by law, order of governmental authority, or court order to be disclosed; when we believe in good faith that disclosure is necessary to protect our rights, protect your safety or the safety of others, investigate fraud, or respond to a government request. We may also share your personal information if permitted under University of Illinois policy, authorized by an approved University of Illinois contract, for good cause by the Chancellor or the Vice President for Academic Affairs of the University of Illinois.
IV. HOW IS YOUR PERSONAL INFORMATION PROTECTED?
We are committed to protect your information and keep your identity as confidential as possible, however total confidentiality cannot be guaranteed. Except as required by law, you will not be identified by name or by any other direct personal identifier. The data collected through the app will be encrypted on the smartphone, transferred electronically and stored securely on the data repository and analysis platform using cloud services at Sage Bionetworks. Your contact information, including your name and e-mail address will be stored separately from the study data. We will use a random code number instead of your name on all your study data. This code cannot be used to directly identify you. Information about the code will be kept in a secure system We will not access your personal contacts, other applications, text or email message content, or websites visited. We will never sell, rent or lease your contact information. We follow generally accepted industry standards to protect the personal information submitted to us. No method of transmission, or method of electronic storage, is 100% secure. Therefore, we cannot guarantee its absolute security.
This information should not be construed in any way as giving business, legal, or other advice, or warranting as fail proof, the security of information provided via the Application.
V. OPT-OUT INFORMATION
You may change your information preferences and opt-out of information collection by uninstalling the Application. Your participation in this study is voluntary. If you are eligible and decide to participate, we will ask you to provide an e-signature, by signing with your finger on the screen at the end of the enrollment process. We will also send a copy of this consent form, along with your e-signature, to your email address.
You do not have to sign this consent form. But if you do not, you will not be able to participate in this research study. You may decide not to participate or you may leave the study at any time. Your decision will not result in any penalty or loss of benefits to which you are entitled.
Although you can withdraw from the study at any time, you cannot withdraw the coded study data that have already been distributed. If you withdraw from the study, we will stop collecting new data but the coded data that you have already provided will not be able to be destroyed or deleted.
The Study Principal Investigator or the sponsor may also withdraw you from the study without your consent at any time for any reason, including if it is in your best interest, you do not consent to continue in the study after being told of changes in the research that may affect you, or if the study is cancelled.
VI. HOW LONG IS YOUR PERSONAL INFORMATION STORED?
We will retain user personal information for as long as you use the Application and for a reasonable time thereafter. If you’d like us to delete your personal information that you have provided via the Application, please contact the study principal investigators using the contact information below and we will respond in a reasonable time. Please note that some or all of the user personal information may be required in order for the Application to function properly, and we may be required to retain certain information by law.
Contact information for the study principal investigators is as follows:
Peter C. Nelson, PhD
Professor of Computer Science
Dean of Engineering
University of Illinois at Chicago
College of Engineering
851 South Morgan Street
Room 838 SEO, M/C 159
Chicago, IL 60607
Alex Leow, MD, PhD
Associate Professor of Psychiatry and Bioengineering
The Psychiatric Institute
1601 West Taylor Street
Room 584
Chicago, IL 60612
VII. CHILDREN
The University is committed to complying fully with the Children’s Online Privacy Protection Act. Accordingly, if a user of the Application is under the age of thirteen, such user is not authorized to provide the University with personal information, and the University will not use any such information in its database or other data collection activities. The University appreciates cooperation with this federally mandated requirement. This application is only intended for use by individuals over the age of eighteen. Users under the age of thirteen and their parents or guardians are cautioned that the collection of personal information volunteered by unauthorized children online or by e-mail will be treated the same as information given by an adult until the University becomes aware that the user is under the age of thirteen and such information may be subject to public access.
VIII. CHANGES TO THIS PRIVACY STATEMENT
We may amend this Privacy Notice from time to time. If we change this Privacy Notice we will post the changes on biaffect.com. Your continued use of our Application after any such changes will constitute your acceptance of the updated Privacy Notice. If you do not wish to accept the revised Privacy Notice, you must not use or access (or continue to use or access) our Application. Please do regularly check our website to determine if the Privacy Notice has been updated and to review those changes before deciding whether or not to access (or continue to access) our Application.
IX. USER ACCESS TO INFORMATION AND CONTACT INFORMATION
To review and update your personal information to ensure it is accurate, contact us at [email protected]
X. DISCLAIMER OF WARRANTIES.
YOU EXPRESSLY AGREE THAT USE OF THE APPLICATION AND ANY CONTENT (SUCH AS TEXT, DATA, INFORMATION, AUDIO, VIDEOS, GRAPHICS, OR PHOTOGRAPHS) MADE AVAILABLE THROUGH THIS APPLICATION (COLLECTIVELY, “MATERIALS”), IS AT YOUR SOLE RISK. THE APPLICATION AND MATERIALS, ARE PROVIDED ON AN “AS IS,” “AS AVAILABLE,” AND “WITH ALL FAULTS” BASIS. UNIVERSITY DISCLAIMS ALL EXPRESS AND IMPLIED CONDITIONS, REPRESENTATIONS, AND WARRANTIES OF ANY KIND, INCLUDING BUT NOT LIMITED TO ANY IMPLIED WARRANTIES OR CONDITIONS OF MERCHANTABILITY, SATISFACTORY QUALITY, FITNESS FOR A PARTICULAR PURPOSE, OR NON-INFRINGEMENT. UNIVERSITY MAKES NO WARRANTY THAT THE SERVICE WILL MEET YOUR REQUIREMENTS OR THAT THE APPLICATION OR THE MATERIALS, WILL BE UNINTERRUPTED, TIMELY, SECURE, OR ERROR FREE; NOR DOES UNIVERSITY MAKE ANY WARRANTY FOR ANY PURPOSE OF THE APPLICATION OR MATERIALS OR RESULTS THAT MAY BE OBTAINED THROUGH USE OF THE APPLICATION OR AS TO THE ACCURACY, SAFETY, RELIABILITY OR USEFULNESS OF ANY INFORMATION OBTAINED THROUGH THE APPLICATION. UNIVERSITY DISCLAIMS ANY WARRANTY THAT THE APPLICATION OR THE MATERIALS, ARE FREE OF VIRUSES, WORMS, TROJAN HORSES, OR OTHER CODE THAT MANIFESTS CONTAMINATING OR DESTRUCTIVE PROPERTIES.
XI LIMITATION OF LIABILITY.
UNIVERSITY, ITS TRUSTEES, DIRECTORS, OFFICERS, FACULTY, STAFF, STUDENTS, EMPLOYEES, CONSULTANTS AND AGENTS ASSUME NO LIABILITY IN RESPECT OF ANY INFRINGEMENT OF ANY COPYRIGHT, TRADEMARK, PATENT OR OTHER RIGHT OF THIRD PARTIES ARISING IN CONNECTION WITH THE APPLICATION AND MATERIALS AND ARE NOT LIABLE FOR ANY DIRECT, INDIRECT, PUNITIVE, SPECIAL, INCIDENTAL, CONSEQUENTIAL OR EXEMPLARY DAMAGES (INCLUDING,WITHOUT LIMITATION, ANY DAMAGES CAUSED BY USE AND IMPLEMENTATION OF MATERIALS, LOSS OF BUSINESS, REVENUE, PROFITS, GOODWILL, USE, DATA OR OTHER ECONOMIC ADVANTAGE) ARISING OUT OF OR IN CONNECTION WITH THE APPLICATION OR MATERIALS, EVEN IF UNIVERSITY, ITS TRUSTEES, DIRECTORS, OFFICERS, FACULTY, STAFF, STUDENTS, EMPLOYEES,CONSULTANTS AND/OR AGENTS HAVE PREVIOUSLY BEEN ADVISED OF, OR REASONABLY COULD HAVE FORESEEN, THE POSSIBILITY OF SUCH DAMAGES, HOWEVER THEY ARISE, WHETHER IN BREACH OF CONTRACT OR IN TORT (INCLUDING NEGLIGENCE OR GROSS NEGLIGENCE). YOU HAVE SOLE RESPONSIBILITY FOR ADEQUATE PROTECTION AND BACKUP OF DATA AND/OR EQUIPMENT USED IN CONNECTION WITH THE APPLICATION.
XII. GOVERNING LAW
Construction of the Privacy Notice, including without limitation, disclaimers above and resolution of disputes thereof are governed by the laws of the State of Illinois. The laws of the State of Illinois, U.S.A., shall apply to all uses of this Application and Materials. By use of this Application and Materials, the user agrees that use shall conform to all applicable laws and regulations and user shall not violate the rights of any third parties.